The Life of a Genetic Mutation.

Part 1:

My host is a young girl named Emma. Emma, to look at, has a smaller head then the average individual, she also has something known as Strawberry Chin. This causes her to look like her chin is one of the smallest features on her face. She will have seizures along with heart defects. Emma’s syndrome is caused by a deletion of Chromosome 4. This is also known as the a “de novo deletion”, witch means that Emma’s parents didn’t have the deletion, therefore in future pregnancies it is very unlikely. Her syndrome is Wolf–Hirschhorn Syndrome. 

Emma started off being a baby that was smaller and grew at a slower rate then the rest. She expirenced a Cleft lip, not everyone with  Wolf–Hirschhorn Syndrome get them although Emma did. Emma has seen bullying come in and out of her life along with sadness because she feels like she is not like the rest.

me, as one of Emma’s genes I got front row seats to see that her Chromosome 4 had a deletion. Nothing affected me however. This is Emma’s story and this is Wolf–Hirschhorn Syndrome. 

Part 2:

Question 1

a) What happened to you as a gene?

b) What caused your mutation ?

c) What effects did the gene mutation have on your host’s body?

d) How was the hosts’s life affect?

e) What is your host’s story?

f) How can I incorporate everyday things into this story? (i.e. bullying, as most kids go through it, wanted to make this story relate to our lives aswell)

Question 2

Honestly nothing new, used Edublog for awhile now and understand it.

Question 3

Googling, writing in my own words, applying it to my Blog.

Question 4

I looked at the toolbar from the cite I was on, copy and pasted into my edublog.

Question 5

I could have done better maybe if we got more time to really investigate what goes on in their bodies and what happens to the outside, but I did what I could do in the time given.

Cited Sources:






My experience so far in the Engendering Brightness Project has been very inspiring in ways that make your day, ways that make you feel good and ways that make you also sad. This project is definitely another experience of a life time, like the SSEP.

The Skype chat we had with Eladio and Dennis was very  moving. It was incredible to view their lives compared to ours. When hearing about the Paid Slavery I wasn’t surprised, yet still shocked. I am not and never will be for Child Slavery. They told our class that there have been many fire’s caused by candle’s as that is their only source of light. That is when I knew we needed to help.

I got with my group after our Skype calls and discussed what we could do to help, I was big on fundraising as, you need money to get supplies before you start constructing the actual lights to possibly send to the Dominican. So, I partnered, originally with Alhan because I knew she was interested in the making of the lights so, I thought great I will fundraise the money for her to create the lights.

After thinking for awhile I thought wouldn’t it be much better to get more people involved in our plan, she agreed. So, we then found three others to work with for ourselves. Zac, Josh and Ben are with Alhan. Ashiana, Alyah, Marwa and I are together fundraising.

We finally resulted in a PhotoBooth for pour fundraising, here is a picture of our #1 fan!…


I am excited to see where this goes! Thanks Mr.Robinson.